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As I shared with you a little over a week ago, Bubby has been having his “can’t walk” spells again and after a trip to a fabulous new doctor and the hospital for full blood work and urinalysis, we still don’t have answers. I have received daily emails, texts, and phone calls from friends and family since I shared our story and I appreciate each and every one of you that has contacted me to show your love and support!
The update isn’t anything miraculous. The blood work and urinalysis all came back clean which in itself is awesome news and we are incredibly relieved. The only problem is, he’s still limping, almost 2 weeks later. It gets better some days, and worsens to almost not walking at all again on others. As his mother, this is unbearable to watch. But, hope of all hope, Dr. McClue (ha, that’s what my friend Jody calls him and I love it) still recognizes that there is a problem and it won’t just go away because these are NOT growing pains.
Our strong family history of kidney issues (my Dad only has one left and my oldest daughter had severe kidney reflux as a young child that took medication, constant specialist visits, and many years to fix), we are still leaning toward that despite the results of the urinalysis. Those tests would not show a blockage or defect. But rather than subject my poor baby to more and more tests right away, Dr. McClue has me keeping a daily journal for a month before returning for more testing. We’re looking for proof and trigger points and it has been eye-opening.
His pee has always stunk seriously bad, he’s never been regular, and he’s been impossible to potty train because he just doesn’t seem to know when he has to “go”. I’ve always told B about his occasional ginormous urination but I just never put 2 and 2 together.
He’s been limping all week, quite heavily in fact since Monday again. I had been journaling everything. Then on Thursday, it was so painfully obvious. He woke up and couldn’t even walk his sister to school with me. He just couldn’t even stand up that long so we took the stroller. I checked his Pull Up before we left and it was completely dry. At 11:15 am, I changed a soiled Pull Up (I am so over changing poopie diapers after 23 years…UGH) but it was still completely dry despite the fact that he had already had 2 cups of drink. Then at 11:45 am, he came running (yes running) to me and excitedly said, “I peed Mommy, I peed!”. He had in fact peed, so much so that his shorts were drenched and there was a puddle on the floor. After we cleaned up, I immediately noticed a change in him. He was still limping but he was running and playing and laughing, and he told me his leg didn’t hurt anymore!
So yes, signs say kidney. And I’m journaling and watching very closely and we check in weekly with Dr. McClue. Bubby is well this weekend, and he’s happy, which makes me happy. And we’re moving closer to answers. The tests will probably be moved up now because of this second “spell” but some of these tests are painful, especially for little boys, so I’m thankful the doctor is narrowing down before proceeding.
I’ll keep y’all posted and I just can’t express enough how moved I am by all of you that have shown such care, concern, and support. It means a lot. Keep sending sparkles and we’ll recycle them and share. Life is good when you have the love and support of your family and friends. Our life is amazingly good!